A Disease May Be Rare, But Hope Should Not Be
The Kinslow TUBB4A Foundation supports families affected by TUBB4A-related conditions — funding research, providing resources, and building a community of hope.
Unlocking Hope & Defying Boundaries
Founded by two dedicated mothers, the Kinslow TUBB4A Foundation has two primary goals: supporting patients and their families, and advancing research toward treatments and a cure.
Family Support
We provide resources, guidance, and a caring community for families navigating a TUBB4A diagnosis. No family should face this journey alone.
Research Funding
Every dollar raised goes toward advancing our understanding of TUBB4A mutations and developing therapeutic interventions that could change lives.
Global Awareness
We work to raise awareness about TUBB4A conditions worldwide, building a patient database and connecting families, researchers, and medical professionals.
Meet the Faces of TUBB4A
Every child affected by TUBB4A has a unique story of courage and resilience. These are some of the warriors and families who inspire our fight.
You Are Not Alone
Receiving a TUBB4A diagnosis can feel overwhelming. We've been there. Our foundation was created by parents who understand exactly what you're going through.
We offer resources to help you understand the diagnosis, connect with other families, and find the right medical team for your child.
Stay Connected
Get updates on research breakthroughs, family stories, events, and ways to support the TUBB4A community.
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